The PECUNIA Patient-Reported-Outcome-Measure-Mental Health Compendium (PECUNIA PROM-MH Compendium) is a Microsoft Excel©-based electronic library of non-disease specific PROMs used in MH research. The PECUNIA PROM-MH Compendium provides meta-data information of existing, publicly available generic PROMs suitable for use in (mental) health research and their applicability in multi-sectoral, multi-national and multi-person (economic) evaluations. It was developed by the Department of Health Economics, Center for Public Health, Medical University of Vienna as part of the Horizon 2020 research project PECUNIA (ProgrammE in Costing, resource use measurement and outcome valuation for Use in multi-sectoral National and International health economic evaluAtions - GA No 779292). In terms of outcome assessment, the project aimed for harmonization in multi-national, multi-sectoral and (where relevant) multi-person economic evaluations by addressing cross-country variations in utility measurement and harmonising methods for broader wellbeing measurement among others.
The methodology of deriving PROMs and their meta-data included in the PROM-MH Compendium library followed a two-step process. Firstly, a systematic literature review was conducted in five bibliographic databases from 2008 until February 2020 to identify relevant non- disease specific PROMs used in mental health research for the measurement of quality of life/well-being, or recovery. Secondly, secondary searches in PubMed and Google were conducted to acquire most up-to-date PROM meta-data information. Meta-data information was searched in scientific articles, instrument manuals, and web-based sources (e.g. questionnaire websites).
The PECUNIA PROM-MH Compendium Version 1.0 consists of 204 unique instruments (PROMs) alongside their comprehensive meta-data and is browseable according to main PROM characteristics. Information about each instrument is organised in five sections:
Registration and access/permission
Anyone wishing to use the PECUNIA PROM-MH Compendium for non-commercial research, healthcare and academic teaching activities can do so free-of-charge following registration. Please complete the Registration Form and return it to firstname.lastname@example.org. You need either Adobe Acrobat Reader or any other programme that can read a pdf File in order to open and fill out the Registration Form. Once registered, you will receive a link via email to view the PECUNIA PROM-MH Compendium. A short video presentation of the PROM-MMH Compendium is available here. If you have any questions about using the PROM-MH Compendium or have troubles with viewing it via the provided link, please contact us via email at email@example.com.
In case of interest for the commercial use of the PECUNIA PROM-MH Compendium, please contact the developers via e-mail at firstname.lastname@example.org at first.
The use of the PECUNIA PROM-MH Compendium is free for non-commercial purposes and is conditional upon citation of the PECUNIA PROM-MH Compendium in any resulting work/publication as follows: